1,332 Data sources

NL
Thematic: No

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European Pediatric Surgical Audit
Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Genetics, Surgery, Pediatrics
DICA,
MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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Urban and Regional Studies Institute

Institutional Repository Netherlands Compatibility:Not yet registeredPartners:University of Groningen

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NARCIS
Data Repository Netherlands Compatibility:Not yet registeredPartners:VSNU, DANS Subject Agnostic, Bibliography, Publication
VSNU,
DANS
doi: 10.25504/fairsharing.f63h4k
doi: 10.25504/fairsharing.f63h4k
NARCIS provides access to scientific information, including (open access) publications from the repositories of all the Dutch universities, KNAW, NWO and a number of research institutes, which is not referenced in other citation databases.
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ARCHE
Data Repository Austria, Netherlands Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:OAW, CLARIN, ACDH-ÖAW, CLARIAH-AT Linguistics, Humanities, Humanities and Social Sciences
OAW,
CLARIN,
ACDH-ÖAW,
CLARIAH-AT
OAI-PMH URL: https://arche.acdh.oeaw.ac.at/oaipmh/
ARCHE (A Resource Centre for the HumanitiEs) is a service aimed at offering stable and persistent hosting as well as dissemination of digital research data and resources for the Austrian humanities community. ARCHE welcomes data from all humanities fields.
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Utrecht University, University Medical Center Utrecht
Institutional Repository Netherlands Compatibility:OpenAIRE Basic (DRIVER OA)Partners:UMC
UMC
OAI-PMH URL: https://dspace.library.uu.nl/oai/request
Publications of Utrecht University, University Medical Center Utrecht
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Dissertations of the University of Groningen

Institutional Repository Netherlands Compatibility:Not yet registeredPartners:University of Groningen

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EUR Data Repository
Data Repository Netherlands Compatibility:Not yet registeredPartners:EUR, Erasmus University Rotterdam, Erasmus University Library Humanities and Social Sciences, Life Sciences, Natural Sciences
EUR,
Erasmus University Rotterdam, Erasmus University Library
re3data: r3d100013834
re3data: r3d100013834
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1,332 Data sources

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European Pediatric Surgical Audit
Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Genetics, Surgery, Pediatrics
DICA,
MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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Hanze UAS repository

Institutional Repository Netherlands Compatibility:Not yet registeredPartners:Hanze UAS

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Urban and Regional Studies Institute

Institutional Repository Netherlands Compatibility:Not yet registeredPartners:University of Groningen

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NARCIS
Data Repository Netherlands Compatibility:Not yet registeredPartners:VSNU, DANS Subject Agnostic, Bibliography, Publication
VSNU,
DANS
doi: 10.25504/fairsharing.f63h4k
doi: 10.25504/fairsharing.f63h4k
NARCIS provides access to scientific information, including (open access) publications from the repositories of all the Dutch universities, KNAW, NWO and a number of research institutes, which is not referenced in other citation databases.
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ARCHE
Data Repository Austria, Netherlands Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:OAW, CLARIN, ACDH-ÖAW, CLARIAH-AT Linguistics, Humanities, Humanities and Social Sciences
OAW,
CLARIN,
ACDH-ÖAW,
CLARIAH-AT
OAI-PMH URL: https://arche.acdh.oeaw.ac.at/oaipmh/
ARCHE (A Resource Centre for the HumanitiEs) is a service aimed at offering stable and persistent hosting as well as dissemination of digital research data and resources for the Austrian humanities community. ARCHE welcomes data from all humanities fields.
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Utrecht University, University Medical Center Utrecht
Institutional Repository Netherlands Compatibility:OpenAIRE Basic (DRIVER OA)Partners:UMC
UMC
OAI-PMH URL: https://dspace.library.uu.nl/oai/request
Publications of Utrecht University, University Medical Center Utrecht
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EUR Data Repository
Data Repository Netherlands Compatibility:Not yet registeredPartners:EUR, Erasmus University Rotterdam, Erasmus University Library Humanities and Social Sciences, Life Sciences, Natural Sciences
EUR,
Erasmus University Rotterdam, Erasmus University Library
re3data: r3d100013834
re3data: r3d100013834
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NL
Thematic: No

European Pediatric Surgical Audit

Hanze UAS repository

Urban and Regional Studies Institute

NARCIS

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Open Universiteit research portal

ARCHE

Utrecht University, University Medical Center Utrecht

Dissertations of the University of Groningen

EUR Data Repository

European Pediatric Surgical Audit

Hanze UAS repository

Urban and Regional Studies Institute

NARCIS

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Open Universiteit research portal

ARCHE

Utrecht University, University Medical Center Utrecht

Dissertations of the University of Groningen

EUR Data Repository

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NL closeThematic: No close

NL
Thematic: No