- NL
- SE
- EU
- Thematic: No
- NL
- SE
- EU
- Thematic: No
- Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Genetics, Surgery, PediatricsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands Compatibility:Not yet registeredPartners:VSNU, DANS Subject Agnostic, Bibliography, PublicationVSNU,DANS
NARCIS provides access to scientific information, including (open access) publications from the repositories of all the Dutch universities, KNAW, NWO and a number of research institutes, which is not referenced in other citation databases.
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:ESS Particles, Nuclei and Fields, Physics, Natural SciencesESSOAI-PMH URL: https://oai.panosc.ess.eu/openaire/oai
European Spallation Source (ESS) Data Catalogue
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University of Groningen institutional repository
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re3data: r3d100010202
OAI-PMH URL: https://datacatalogue.cessda.eu/oai-pmh/v0/oaiThe CESSDA Data Catalogue contains the metadata of all data in the holdings of CESSDA service providers. It is a one-stop-shop for search and discovery, enabling effective access to European research data for researchers. Details of over 40, 000 data collections are listed. These are harvested from fifteen different CESSDA Service Providers.
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For further information contact us at helpdesk@openaire.eu - Data Repository United States, European Union Compatibility:Not yet registeredPartners:NIDCD, Human Brain Project Cellular Neuroscience, Neurophysiology, NeurobiologyNIDCD,Human Brain Project
NeuronDB provides a dynamically searchable database of three types of neuronal properties: voltage gated conductances, neurotransmitter receptors, and neurotransmitter substances. It contains tools that provide for integration of these properties in a given type of neuron and compartment, and for comparison of properties across different types of neurons and compartments.
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union, France Compatibility:Not yet registeredPartners:ELRA, ELDA Humanities and Social Sciences, Linguistics, HumanitiesELRA,ELDA
re3data: r3d100013209
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- Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Genetics, Surgery, PediatricsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands Compatibility:Not yet registeredPartners:VSNU, DANS Subject Agnostic, Bibliography, PublicationVSNU,DANS
NARCIS provides access to scientific information, including (open access) publications from the repositories of all the Dutch universities, KNAW, NWO and a number of research institutes, which is not referenced in other citation databases.
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re3data: r3d100010202
OAI-PMH URL: https://datacatalogue.cessda.eu/oai-pmh/v0/oaiThe CESSDA Data Catalogue contains the metadata of all data in the holdings of CESSDA service providers. It is a one-stop-shop for search and discovery, enabling effective access to European research data for researchers. Details of over 40, 000 data collections are listed. These are harvested from fifteen different CESSDA Service Providers.
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For further information contact us at helpdesk@openaire.eu - Data Repository United States, European Union Compatibility:Not yet registeredPartners:NIDCD, Human Brain Project Cellular Neuroscience, Neurophysiology, NeurobiologyNIDCD,Human Brain Project
NeuronDB provides a dynamically searchable database of three types of neuronal properties: voltage gated conductances, neurotransmitter receptors, and neurotransmitter substances. It contains tools that provide for integration of these properties in a given type of neuron and compartment, and for comparison of properties across different types of neurons and compartments.
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re3data: r3d100013209
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