- NL
- SE
- AT
- EU
- Thematic: No
- NL
- SE
- AT
- EU
- Thematic: No
- Data Repository Netherlands, United States Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:University of Groningen, Universiteit Utrecht, Universiteitsbibliotheek, Trimbos Institute, LIS, NIOO +7 partners Humanities and Social Sciences, Life Sciences, Natural SciencesUniversity of Groningen,Universiteit Utrecht, Universiteitsbibliotheek,Trimbos Institute,LIS,NIOO,Maastricht University, University Library,Leiden University,Dataverse,DANS,VUA,Utrecht University,4TU.Federation
re3data: r3d100011201
OAI-PMH URL: https://dataverse.nl/oaiOnline storage, sharing and registration of research data, during the research period and after its completion. DataverseNL is a shared service provided by participating institutions and DANS.
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For further information contact us at helpdesk@openaire.eu - Data Repository United Kingdom, Netherlands Compatibility:Not yet registeredPartners:University of Liverpool, RUNMC Drug Discovery, Drug Development, Biomedical ScienceUniversity of Liverpool,RUNMC
Nearly 60% of patients undergoing cancer treatment are estimated to have had at least one potential drug-drug interaction; for patients receiving oral anticancer therapy, up to 50% have been reported to experience a potential drug-drug interaction, with 16% experiencing a major event. Drug-drug interactions are therefore a significant issue for cancer patients and the health care professionals who treat them. Combining the internationally recognised drug-drug interactions expertise of the University of Liverpool (UK) with the clinical pharmacology in oncology and haemotology expertise of Radboud University, Nijmegen (the Netherlands), this site was established in 2017 in response to the need for improved management of DDIs with anti-cancer agents.
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For further information contact us at helpdesk@openaire.eu - Data Repository United States, Netherlands Compatibility:Not yet registeredPartners:CHLA, Netherlands Genomic Initiative Medicine, Genomics, PhenomicsCHLA,Netherlands Genomic Initiative
The Mitochondrial Disease Sequence Data Resource (MSeqDR) is a centralized genome and phenome bioinformatics resource built by the mitochondrial disease community to facilitate clinical diagnosis and research investigations of individual patient phenotypes, genomes, genes, and variants. It integrates community knowledge from expert‐curated databases with genomic and phenotype data shared by clinicians and researchers.
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands Compatibility:Not yet registeredPartners:RAN Humanities and Social Sciences, Life Sciences, Natural SciencesRAN
re3data: r3d100014120
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Genetics, Surgery, PediatricsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Data Repository Austria, United Kingdom Compatibility:Not yet registeredPartners:eLTER, UKCEH Environmental Science, Ecology, Ecosystem ScienceeLTER,UKCEH
re3data: r3d100012910
DEIMS-SDR (Dynamic Ecological Information Management System - Site and Dataset Registry) is an information management system for the discovery of long-term environmental research and monitoring facilities around the globe, along with the data gathered at those sites and the people and networks associated with them. DEIMS-SDR includes metadata such as site location, ecosystem, facilities, parameters measured and research themes.
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands Compatibility:Not yet registeredPartners:VSNU, DANS Subject Agnostic, Bibliography, PublicationVSNU,DANS
NARCIS provides access to scientific information, including (open access) publications from the repositories of all the Dutch universities, KNAW, NWO and a number of research institutes, which is not referenced in other citation databases.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Austria Compatibility:OpenAIRE 3.0 (OA, funding)Partners:FH Burgenland Ecology and Environment, Social Sciences General, Business and EconomicsFH BurgenlandOAI-PMH URL: https://people.fh-burgenland.at/server/oai/request
This site provides access to the academic output of the University. Not all items are available in full text. The interface is available in German.
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For further information contact us at helpdesk@openaire.eu
- Data Repository Netherlands, United States Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:University of Groningen, Universiteit Utrecht, Universiteitsbibliotheek, Trimbos Institute, LIS, NIOO +7 partners Humanities and Social Sciences, Life Sciences, Natural SciencesUniversity of Groningen,Universiteit Utrecht, Universiteitsbibliotheek,Trimbos Institute,LIS,NIOO,Maastricht University, University Library,Leiden University,Dataverse,DANS,VUA,Utrecht University,4TU.Federation
re3data: r3d100011201
OAI-PMH URL: https://dataverse.nl/oaiOnline storage, sharing and registration of research data, during the research period and after its completion. DataverseNL is a shared service provided by participating institutions and DANS.
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For further information contact us at helpdesk@openaire.eu - Data Repository United Kingdom, Netherlands Compatibility:Not yet registeredPartners:University of Liverpool, RUNMC Drug Discovery, Drug Development, Biomedical ScienceUniversity of Liverpool,RUNMC
Nearly 60% of patients undergoing cancer treatment are estimated to have had at least one potential drug-drug interaction; for patients receiving oral anticancer therapy, up to 50% have been reported to experience a potential drug-drug interaction, with 16% experiencing a major event. Drug-drug interactions are therefore a significant issue for cancer patients and the health care professionals who treat them. Combining the internationally recognised drug-drug interactions expertise of the University of Liverpool (UK) with the clinical pharmacology in oncology and haemotology expertise of Radboud University, Nijmegen (the Netherlands), this site was established in 2017 in response to the need for improved management of DDIs with anti-cancer agents.
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For further information contact us at helpdesk@openaire.eu - Data Repository United States, Netherlands Compatibility:Not yet registeredPartners:CHLA, Netherlands Genomic Initiative Medicine, Genomics, PhenomicsCHLA,Netherlands Genomic Initiative
The Mitochondrial Disease Sequence Data Resource (MSeqDR) is a centralized genome and phenome bioinformatics resource built by the mitochondrial disease community to facilitate clinical diagnosis and research investigations of individual patient phenotypes, genomes, genes, and variants. It integrates community knowledge from expert‐curated databases with genomic and phenotype data shared by clinicians and researchers.
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands Compatibility:Not yet registeredPartners:RAN Humanities and Social Sciences, Life Sciences, Natural SciencesRAN
re3data: r3d100014120
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Genetics, Surgery, PediatricsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Data Repository Austria, United Kingdom Compatibility:Not yet registeredPartners:eLTER, UKCEH Environmental Science, Ecology, Ecosystem ScienceeLTER,UKCEH
re3data: r3d100012910
DEIMS-SDR (Dynamic Ecological Information Management System - Site and Dataset Registry) is an information management system for the discovery of long-term environmental research and monitoring facilities around the globe, along with the data gathered at those sites and the people and networks associated with them. DEIMS-SDR includes metadata such as site location, ecosystem, facilities, parameters measured and research themes.
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands Compatibility:Not yet registeredPartners:VSNU, DANS Subject Agnostic, Bibliography, PublicationVSNU,DANS
NARCIS provides access to scientific information, including (open access) publications from the repositories of all the Dutch universities, KNAW, NWO and a number of research institutes, which is not referenced in other citation databases.
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Austria Compatibility:OpenAIRE 3.0 (OA, funding)Partners:FH Burgenland Ecology and Environment, Social Sciences General, Business and EconomicsFH BurgenlandOAI-PMH URL: https://people.fh-burgenland.at/server/oai/request
This site provides access to the academic output of the University. Not all items are available in full text. The interface is available in German.
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