- PL
- SK
- EU
- Thematic: No
- PL
- SK
- EU
- Thematic: No
- Institutional Repository Poland Compatibility:Not yet registeredPartners:UMCSUMCS
The Maria Curie-Skłodowska University Base of Knowledge contains information about ongoing scientific, research and implementation works, as well as publications, reports on research conducted with public funds, defended doctoral theses, teaching activities and completed diploma theses in first- and second-cycle studies. The system records information on the scientific achievements of employees, doctoral students and students, collected in accordance with the requirements specified for the evaluation of employees and scientific units. The Repository, which is an important part of the system, archives digitally the full texts of materials documenting the work being carried out, including: monographs, articles, book chapters and reports, as well as the texts of works constituting the basis for awarding scientific degrees and titles. Access to these works may be limited only by the conditions specified in contracts between authors and owners of economic rights to the work (publishers, institutions financing research). The principles of operation of the system are specified in Order No. 53/2022 of the Rector of the Maria Curie-Skłodowska University in Lublin of May 23, 2022 on the introduction of the Knowledge Base Regulations.
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:ESS Particles, Nuclei and Fields, Physics, Natural SciencesESSOAI-PMH URL: https://oai.panosc.ess.eu/openaire/oai
European Spallation Source (ESS) Data Catalogue, SciCat instance
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Poland Compatibility:OpenAIRE CRIS v1.1Partners:Wrocław Medical UniversityWrocław Medical University
re3data: r3d100013487
OAI-PMH URL: https://ppm.edu.pl/oaiThis site provides access to the research outputs of partnered Polish institutions. The interface is available in English and Polish.
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For further information contact us at helpdesk@openaire.eu - Data Repository Poland Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:Open Science Platform, Interdisciplinary Centre for Mathematical and Computational Modelling University of Warsaw Humanities and Social Sciences, Life Sciences, Natural SciencesOpen Science Platform,Interdisciplinary Centre for Mathematical and Computational Modelling University of WarsawOAI-PMH URL: https://repod.pon.edu.pl/oai
Repository for Open Data (RepOD)
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- Institutional Repository Poland Compatibility:Not yet registeredPartners:UMCSUMCS
The Maria Curie-Skłodowska University Base of Knowledge contains information about ongoing scientific, research and implementation works, as well as publications, reports on research conducted with public funds, defended doctoral theses, teaching activities and completed diploma theses in first- and second-cycle studies. The system records information on the scientific achievements of employees, doctoral students and students, collected in accordance with the requirements specified for the evaluation of employees and scientific units. The Repository, which is an important part of the system, archives digitally the full texts of materials documenting the work being carried out, including: monographs, articles, book chapters and reports, as well as the texts of works constituting the basis for awarding scientific degrees and titles. Access to these works may be limited only by the conditions specified in contracts between authors and owners of economic rights to the work (publishers, institutions financing research). The principles of operation of the system are specified in Order No. 53/2022 of the Rector of the Maria Curie-Skłodowska University in Lublin of May 23, 2022 on the introduction of the Knowledge Base Regulations.
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For further information contact us at helpdesk@openaire.eu - Data Repository Netherlands, European Union Compatibility:Not yet registeredPartners:DICA, MRDM Pediatrics, Biomedical Science, GeneticsDICA,MRDM
The EPSA | ERNICA Registry is to improve the quality of patient care by enabling health care providers to get insight in their outcomes and using the cumulative data from the EPSA registry to conduct scientific research, for example to compare treatments or identify certain risk factors for complications. The EPSA (European Pediatric Surgical Audit) registry contains information on diseases seen in new-born children, like: Hirschsprung’s disease, Congenital Diaphragmatic Hernia, Oesophageal Atresia, Anorectal Malformation, Omphalocele and Gastroschisis. ERNICA is the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies European Reference Networks and aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. ERNICA monitors and evaluates its activities in accordance with the ERN-wide monitoring framework of expert healthcare professionals from specialised healthcare providers across Europe. These networks seek to pool together the expertise available across Europe and concentrate knowledge and resources on rare and/or complex diseases. Each ERN focuses on a particular rare disease area with two diagnostic groups: Malformations of the digestive system (oesophageal diseases, intestinal diseases, intestinal failure and gastroenterological diseases) and Malformations of the diaphragm and abdominal wall (Malformations of the diaphragm and Abdominal wall defects) This standard defines the metadata required to insure availability, versioning and interoperability of the EPSA|ERNICA data.
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For further information contact us at helpdesk@openaire.eu - Data Repository European Union Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:ESS Particles, Nuclei and Fields, Physics, Natural SciencesESSOAI-PMH URL: https://oai.panosc.ess.eu/openaire/oai
European Spallation Source (ESS) Data Catalogue, SciCat instance
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For further information contact us at helpdesk@openaire.eu - Institutional Repository Poland Compatibility:OpenAIRE CRIS v1.1Partners:Wrocław Medical UniversityWrocław Medical University
re3data: r3d100013487
OAI-PMH URL: https://ppm.edu.pl/oaiThis site provides access to the research outputs of partnered Polish institutions. The interface is available in English and Polish.
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For further information contact us at helpdesk@openaire.eu - Data Repository Poland Compatibility:OpenAIRE Data (funded, referenced datasets)Partners:Open Science Platform, Interdisciplinary Centre for Mathematical and Computational Modelling University of Warsaw Humanities and Social Sciences, Life Sciences, Natural SciencesOpen Science Platform,Interdisciplinary Centre for Mathematical and Computational Modelling University of WarsawOAI-PMH URL: https://repod.pon.edu.pl/oai
Repository for Open Data (RepOD)
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